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Raising a Child with a Neuromuscular Disorder
By Charlotte E. Thompson, M.D.
A must-read for parents, grandparents, professionals, and others who care for children with a neuromuscular disorder.
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Description
This comprehensive guide: - Discusses how to cope with the initial shock of the diagnosis of a child's neuromuscular disorder - Describes the principal diseases giving the history, symptoms, and the usual course - Provides information on the most up-to-date treatments - Offers advice on second opinions, navigating the medical maze, and working with a child's medical team - Gives tips on appropriate school placement and developing an individual education program - Includes a large appendix that contains resources state by state and country by country
